Bay Area Association of Kidney Patients

Educating & Supporting Bay Area Kidney Patients

Hi all,

My husband, Alan Lapp, and I are new members.
He has PKD and we are contacting transplant centers to arrange for live transplant.
We have been exploring the kidney and stem cell transplant combination that is a phase II clinical trial at Northwestern Memorial Hospital in Chicago.
We just got bad news that I can not be his donor due to asymptomatic kidney stones I did not know I had. Even though we have a number of very generous friends and family members who have offered to donate kidneys, it's a hard moment and brings up worries about the future.

Al and I run a blog, and Linda Umbach suggested that I share the URL:
http://alskidneyride.wordpress.com

Best to all.

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Comment by Leesa Yim on September 17, 2014 at 9:38pm

Garry and Zina, I see you two connected as friends here and talking about blood type.  I would love to hear update on organ donation, if anything is happening. 

Comment by Garry K R Wardlaw on September 16, 2014 at 10:08am

You can email me Directly if you wish, gazmw1888@yahoo.com or chat with me on facebook...  gaz mw  :)   speak soon...:)

Comment by Zina Deretsky on September 16, 2014 at 10:03am

Dear Garry, thank you for asking: my husband is also O+. 

Comment by Garry K R Wardlaw on September 16, 2014 at 9:49am

What Blood type is your husband ?? 

I'm O Positive and I'm registered as a living donor...:)

Comment by Zina Deretsky on January 25, 2014 at 1:40pm

Thank you Catherine.

Comment by Catherine Enciso on January 25, 2014 at 12:10pm
Zina, we are here for you and Alan. Catherine
Comment by Zina Deretsky on January 25, 2014 at 12:07pm

One question I have about the Walser diet, is: can I help my husband by also following it? Is it something that would be okay or healthy for a healthy person? (I'm a vegetarian from birth).

Comment by Zina Deretsky on January 25, 2014 at 12:04pm

thank you! Looking forward to it.

Comment by Patrick Barron on January 25, 2014 at 12:03pm

Yes Zina, I'm surprised more doctors/dietitians do not promote the Walser diet. The answer I get when I ask doctors is that it's too strict to follow. Now I won't deny it takes a serious commitment but avoiding dialysis became my number one priority when I went on the diet. There's another factor that is never mentioned but I think is part of the story and that is, if you are not closely monitored with frequent lab tests and have trouble managing your numbers you can get into trouble. Zina, look out for a post to my blog on Monday, where I will post how I implemented the Walser diet. It will tie-in there with my story with PKD.

Comment by Zina Deretsky on January 25, 2014 at 11:35am

Dear Patrick,

Thank you for reading my posts, and checking out our blog.
Thanks for the idea about matchingdonors.com; I will check it out.
Congratulations on passing your sixth kidney anniversary! How wonderful.

Coincidentally, I just learned about Dr. Walser's book right before our trip to Chicago. I wish I would have found it many many years ago…funny how preventative kidney care is really almost "covered up" as he relates.

I would love to hear more about how you implemented that diet. My husband is interested in starting it (we haven't finished the book yet)…and it seems like a complicated lifestyle change. I would love any tips, recipes, pointers or opinions on where and how to source the amino acids.

I would be happy to speak about the Chicago program… at least to the degree that I understand it.

Best,

Zina

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