My husband, Alan Lapp, and I are new members.
He has PKD and we are contacting transplant centers to arrange for live transplant.
We have been exploring the kidney and stem cell transplant combination that is a phase II clinical trial at Northwestern Memorial Hospital in Chicago.
We just got bad news that I can not be his donor due to asymptomatic kidney stones I did not know I had. Even though we have a number of very generous friends and family members who have offered to donate kidneys, it's a hard moment and brings up worries about the future.
Al and I run a blog, and Linda Umbach suggested that I share the URL:
Best to all.