Bay Area Association of Kidney Patients

Educating & Supporting Bay Area Kidney Patients


Latest Activity

Patrick Barron's 2 events were featured
Patrick Barron posted events
Willie J Mackey's event was featured

Sunnyvale Fit & Fun Fair at Columbia Neighborhood Center

April 26, 2014 from 11am to 3pm
Come visit and/or volunteer at the BAAKP information table.  Setup starts at 10 AM.  Contact Willie…See More
Patrick Barron posted a discussion

Good news for diabetics from CDC: Rates for end-stage renal disease fell by about 30%

We are always hearing news about diabetes' spread around the world at an unprecedented rate, and…See More


Bay Area Association of Kidney Patients is an all volunteer, non-profit organization formed to educate and support Bay Area kidney patients




CDC: Rates for end-stage renal disease in diabetics has fallen by about 30%

Started by Patrick Barron on Tuesday. 0 Replies

We are always hearing news about diabetes' spread around the world at an unprecedented rate, and most of us can point to someone we know suffering the complications. Well here's some good news. A newly published study by the CDC points to a substantial decline  in the complications of diabetes - kidney failure of course being a big one. Here's an excerpt from an article in the current issues of NNI with the news:"Rates of five major diabetes-related complications have declined substantially in…Continue

Tags: complications, decline, esrd, diabetes

Good news! CMS scraps plans to lift protected class status of transplant drugs

Started by Patrick Barron Mar 17. 0 Replies

The Centers for Medicare & Medicaid Services Administrator Marilyn Tavenner said the agency does not plan to finalize certain elements of its proposed rule for Medicare Part D prescription drug plans. Tavenner said in a letter to lawmakers that the agency received numerous concerns about the proposed rule released in January that would include changes to the…Continue

Tags: medicare, protected, class, drugs, immunosuppressive

Blog Posts

Kidney friends: What messages do you want me to take to Capitol Hill on May 1st?

Posted by Shar S. Carlyle on April 2, 2014 at 4:43pm 1 Comment

Hi BAAKP folks,

What are your concerns?

I'm Representing People with PKD on Capitol Hill May 1, 2014.  This will be my 2nd trip, the first was in 2012 for NKF.  Join me in support of the passage of The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013, bill numbers S. 323 and H.R. 1428 as much as I do?  This is a key issue for me as a transplant recipient.  But there are thousands of us who will be helped by this legislation now and in the…


Saying hello

Posted by Zina Deretsky on January 23, 2014 at 10:59pm 7 Comments

Hi all,

My husband, Alan Lapp, and I are new members.

He has PKD and we are contacting transplant centers to arrange for live transplant.

We have been exploring the kidney and stem cell transplant combination that is a phase II clinical trial at Northwestern Memorial Hospital in Chicago.

We just got bad news that I can not be his donor due to asymptomatic kidney stones I did not know I had. Even though we have a number of very generous friends and family members who have…


Board of Directors

Walt Umbach, President Pro Tem
Ben Lee, Treasurer
Dhiman Barman
Patrick Barron
Zina Deretsky, CMI
Catherine Enciso
Robert Furniss
Mallory Ignacio
Mila Kelman
Willie Mackey
Tien Tracy Tarkul
Vivian-Jan Tarkul
Linda Umbach
Marcus Wong
Phil Wyche
Leesa Yim

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