Bay Area Association of Kidney Patients

Educating & Supporting Bay Area Kidney Patients

RESOURCES

Latest Activity

Ruth Price is now a member of Bay Area Association of Kidney Patients
yesterday
Willie J Mackey updated an event
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The Charles & Joan Horngren Kidney Education Series at Palo Alto Medical Foundation

May 17, 2015 from 1pm to 4pm
"Successful Strategies for Hopeful Transplant Recipients" by Risa Simon CEO,…See More
Friday
Shar S. Carlyle posted a blog post

2015 Kidney Patient Summit: Advocating for Kidney Patients on Capitol Hill

What is your message to take to Washington DC in 2015?  I am representing California kidney…See More
Feb 24
Deron Johnson updated their profile
Feb 24

Members

Bay Area Association of Kidney Patients is an all volunteer, non-profit organization formed to educate and support Bay Area kidney patients

About

Linda Umbach created this Ning Network.
 

Our next Educational Presentation will return to Palo Alto in May !!!

Thanks to everyone for making our first
East Bay Educational Presentation such a success,
and we look forward to more outreach
throughout the San Francisco Bay Area.

BAAKP is very excited about our next event in May:

Download/Print Poster      Additional Information

Forum

Great Video on New Kidney Allocation System

Started by Willie J Mackey. Last reply by Mallory Ignacio Feb 17. 1 Reply

Haemodialysis outcomes in type 2 diabetes patients

Started by Simone burns. Last reply by Linda Umbach Feb 13. 1 Reply

Monthly blood draws for cadaver lists

Started by Zina Deretsky. Last reply by Zina Deretsky Feb 3. 2 Replies

Blog Posts

2015 Kidney Patient Summit: Advocating for Kidney Patients on Capitol Hill

Posted by Shar S. Carlyle on February 24, 2015 at 10:20am 0 Comments

What is your message to take to Washington DC in 2015?  I am representing California kidney patients for the third time on Capitol Hill on March 2nd and 3rd as a patient advocate for the National Kidney Foundation.  Last year I went as a guest of the Polycystic Kidney Disease foundation.   Have you heard the expression, "3rd Time is the Charm?" I hope this will be the year that Washington embraces the NEW bipartisan legislation to provide immunosuppressant medications for the life of the…

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Prescription drugs MUCH cheaper at Costco than anywhere else. I take an autoimmune suppressant drug- at Walgreens it was $760 for a one month supply- at Costco, $250 for three months! NOTE- because p…

Posted by michael roman on October 29, 2014 at 8:35pm 1 Comment

Prescription drugs MUCH cheaper at Costco than anywhere else. I take an autoimmune suppressant drug- at Walgreens it was $760 for a one month supply- at Costco, $250 for three months!

NOTE- because pharmacists are licensed by the state of California, anyone can use the Costco Pharmacy- You don't have to be a Costco member.

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Highly sensitized

Posted by Lenore Williams on July 10, 2014 at 12:45pm 2 Comments

Lost my first transplant a year ago- reaction to an antibiotic. Just fount out I am highly sensitized. PRA is 92%. Does anyone have this problem. Does anyone have experience with the desensitization program at Cedars Sinai in LA?

Kidney friends: What messages do you want me to take to Capitol Hill on May 1st?

Posted by Shar S. Carlyle on April 2, 2014 at 3:43pm 2 Comments

Hi BAAKP folks,

What are your concerns?

I'm Representing People with PKD on Capitol Hill May 1, 2014.  This will be my 2nd trip, the first was in 2012 for NKF.  Join me in support of the passage of The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013, bill numbers S. 323 and H.R. 1428 as much as I do?  This is a key issue for me as a transplant recipient.  But there are thousands of us who will be helped by this legislation now and in the…

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2014-15 Events Calendar

Spring 2015 Kidney Konnections!

Our Spring 2015 Kidney Konnections is out now:

"This is a Good Time to Be a Kidney Patient" !!!
+
"Everything You Ever Wanted to Know About Your Dialysis Access" !!!

Read it while it's HOT!

You can still find
Dr. Gottheiner's May 2014 presentation on "Chronic Kidney Disease: Staying One Step Ahead - An Update" on our video page.

Board of Directors

Walt Umbach,
   President Pro Tem
Ben Lee, Treasurer
Christie Chapman
Zina Deretsky
Mallory Ignacio
Willie Mackey
Sam Sukhu
Tien Tracy Tarkul
Vivian-Jan Tarkul
Linda Umbach
Marcus Wong
Phil Wyche

  

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