Bay Area Association of Kidney Patients is an all volunteer, non-profit organization formed to educate and support Bay Area kidney patients
The Centers for Medicare & Medicaid Services Administrator Marilyn Tavenner said the agency does not plan to finalize certain elements of its proposed rule for Medicare Part D prescription drug plans. Tavenner said in a letter to lawmakers that the agency received numerous concerns about the proposed rule released in January that would include changes to the…Continue
Hi BAAKP folks,
What are your concerns?
I'm Representing People with PKD on Capitol Hill May 1, 2014. This will be my 2nd trip, the first was in 2012 for NKF. Join me in support of the passage of The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013, bill numbers S. 323 and H.R. 1428 as much as I do? This is a key issue for me as a transplant recipient. But there are thousands of us who will be helped by this legislation now and in the…Continue
My husband, Alan Lapp, and I are new members.
He has PKD and we are contacting transplant centers to arrange for live transplant.
We have been exploring the kidney and stem cell transplant combination that is a phase II clinical trial at Northwestern Memorial Hospital in Chicago.
We just got bad news that I can not be his donor due to asymptomatic kidney stones I did not know I had. Even though we have a number of very generous friends and family members who have…