Bay Area Association of Kidney Patients

Educating & Supporting Bay Area Kidney Patients


Latest Activity

Linda Umbach and Zina Deretsky are now friends
Ricardo A. Morales is now a member of Bay Area Association of Kidney Patients
Linda Umbach commented on Shar S. Carlyle's blog post Kidney friends: What messages do you want me to take to Capitol Hill on May 1st?
"I am concerned with all of your topics.  Two questions; with the new UNOS regulations to go…"
Apr 6
Peggy SImon posted an event

"Living Well with Chronic Conditions" at Stanford Hospital Health Library

April 1, 2014 at 1:30pm to May 6, 2014 at 1:30pm
Living Well with Chronic Conditions(A Stanford Self-Management Program)For adults 50 and…See More
Apr 6


Bay Area Association of Kidney Patients is an all volunteer, non-profit organization formed to educate and support Bay Area kidney patients




Good news! CMS scraps plans to lift protected class status of transplant drugs

Started by Patrick Barron Mar 17. 0 Replies

The Centers for Medicare & Medicaid Services Administrator Marilyn Tavenner said the agency does not plan to finalize certain elements of its proposed rule for Medicare Part D prescription drug plans. Tavenner said in a letter to lawmakers that the agency received numerous concerns about the proposed rule released in January that would include changes to the…Continue

Tags: medicare, protected, class, drugs, immunosuppressive

diet app with protein info

Started by Zina Deretsky. Last reply by Patrick Barron Mar 6. 3 Replies

Dear all,Does anyone know of a diet app that counts calories, but also keeps track of protein intake?Thank you, ZinaContinue

Blog Posts

Kidney friends: What messages do you want me to take to Capitol Hill on May 1st?

Posted by Shar S. Carlyle on April 2, 2014 at 4:43pm 1 Comment

Hi BAAKP folks,

What are your concerns?

I'm Representing People with PKD on Capitol Hill May 1, 2014.  This will be my 2nd trip, the first was in 2012 for NKF.  Join me in support of the passage of The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013, bill numbers S. 323 and H.R. 1428 as much as I do?  This is a key issue for me as a transplant recipient.  But there are thousands of us who will be helped by this legislation now and in the…


Saying hello

Posted by Zina Deretsky on January 23, 2014 at 10:59pm 7 Comments

Hi all,

My husband, Alan Lapp, and I are new members.

He has PKD and we are contacting transplant centers to arrange for live transplant.

We have been exploring the kidney and stem cell transplant combination that is a phase II clinical trial at Northwestern Memorial Hospital in Chicago.

We just got bad news that I can not be his donor due to asymptomatic kidney stones I did not know I had. Even though we have a number of very generous friends and family members who have…


Board of Directors

Walt Umbach, President Pro Tem
Ben Lee, Treasurer
Dhiman Barman
Patrick Barron
Catherine Enciso
Robert Furniss
Mallory Ignacio
Mila Kelman
Willie Mackey
Tien Tracy Tarkul
Vivian-Jan Tarkul
Linda Umbach
Marcus Wong
Phil Wyche
Leesa Yim

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